We want to thank you all once again for your continued love.
After last week’s fevers, nausea, and the fear of infection, which led to many different tests, Will was cleared and discharged from the hospital on Sunday. We were told that they extended his radiation and chemotherapy treatments. The last radiation will be on the 27th and last chemo on the 28th, if he is able to go to each one between now and then.
Will started having difficulty with the feeding tube this past week. We found out that the difficulty was caused by a manufacturing defect in the tube. So we ended up back in the ER last night to see if they could find the correct piece for his tube. If they were unable to, then they would have to perform another surgery with a completely different tube. After many hours and many calls, they were able to track down the right piece and we were able to go home without having to do another surgery! The feeding tube does seem to be really helping…Will has gained back about 10 lbs! 20 lbs more to go.
This past week was a very difficult week to get through, but we did! It’s the weekend! We are certainly living for the weekends these days as Will has definitely reached the stage of being miserable most of the time. The “good” days have been very few and far between. We no longer go by the day, but more so, the hour and minute. Longing for a moment of relief and calm. This afternoon was one of those times. We were both able to nap which has made the world seem a little brighter than last night in the wee hours of the morning in the ER, when I started writing this.
Overall, Will’s body and mind are in a daily struggle to keep moving forward. Emotionally, he is spent. I wish with all my heart that we had better news to report with each update, but that is just not the reality of our current situation. It’s hard to make sense of this and we know that we probably never will, but we are not without hope. We know that nothing is guaranteed to us, so we will find hope and peace in what we are sure of. We are certain that this was the path marked out for us in our journey through life. It is not a path either one of us would choose, but it is ours and we want to live it well.
If you would like to pray…Will you pray that we will live this well. Will you pray for Will to have strength to make it through the next 2 1/2 weeks of treatment…for him to have the mental and emotional stamina to get through each day. And, again for healing from all cancer and that the cancer has not spread.
With hope and love,