Along this journey we have met incredible people, reconnected with old friends, deepened old and new friendships, and heard story after story about other people somehow connecting because of this experience. We are overwhelmed by the beauty of community.
Will and I, both being introverts, have found it hard at times to put ourselves out there and really connect with people. We have spent many evenings throughout our marriage talking about how we might cultivate community better. We always knew it was important, but until we were faced with a life and death situation, we didn’t know just how much we needed other people in our lives — and you have been here with us.
I am brought to tears by how much love we have received these past 9 months. And, now, with treatment in Arizona… we have been here for 3 weeks and we already have the resources we need for the initial 8 weeks plus more!
To say “thank you” does not seem adequate for how much our hearts are overflowing with thankfulness!
Will is doing really well. This week was probably the hardest since we first arrived but it’s still an improvement from how he felt before. Last night, Will got sick and then developed a cough. Getting a cough has been one of our greatest fears because of the excruciating pain that he feels in his chest; even a small cough was unbearable. But last night, for the first time since the tumor developed on his sternum, there wasn’t any pain with the cough! Just another sign of improvement!
One treatment he has is IPT, insulin potentiation therapy. After this therapy, Will was given apple juice to raise his blood sugar levels after having them lowered by the insulin. Will has eaten by mouth only once or twice in the past 5 months, but this past week, he ate! Coconut mango sorbet! And, he was able to taste it…! His taste buds have returned (mostly)! It was so exciting that we had to take pictures. We were even sent home with a strawberry sorbet for him to enjoy (and practice) over the weekend.
We are still very early on in the treatment, but at this point, we could not be more pleased with the care and we could not be more confident that this is exactly where we are supposed to be. It is a wonderful environment with very loving, caring, knowledgeable people. It’s also nice walking through this with the other patients here, who are incredible people to be around each day.
We are missing all of our friends very much, but we know we are we are supposed to be here. And we also know that we could not be here if we didn’t have a community of family and friends and even strangers, making it possible.